DHG, GUCH-PA, and PHA UK call for specific NHS quality standard for people co-diagnosed with a congenital heart condition and PAH

Released Thursday May 5th 2012

DHG, GUCH-PA, and PHA UK call for specific NHS quality standard for people co-diagnosed with a congenital heart condition and PAH

DHG has joined forces with Pulmonary Hypertension Association UK (PHA UK) and the Grown Up Congenital Heart Patients Association (GUCH PA) to call for the needs of people co-diagnosed with a congenital heart condition and pulmonary arterial hypertension (PAH) to be addressed in the ongoing NHS review and designation of adult congenital heart disease (ACHD) services.

Over the past year we have been working together on a research project ‘A Time of Opportunity?’ among patients, carers, healthcare professionals and commissioners into the services for people born with a congenital heart condition who also have developed PAH.

“Evidence shows that appropriate specialist management of ACHD patients can result in better outcomes, and therefore these patients require specialist care to ensure that the condition is properly managed” explains Iain Armstrong a PAH Nurse Consultant from Sheffield and Chairman of PHA UK.

The patient experience report and recommendations are available to download here:

Patient and Carer Experience Report

Press Release