Book List
There are many books available covering all the different issues relating to Down's Syndrome. You will be able to borrow many of them from your local public library, others you may wish to refer to again and again so you may want to purchase your own copy. Many of them are available as used copies from booksellers such as Amazon.com.
Heart Children: A Practical Handbook for Parents of Children with Congenital Heart Problems
Pub. Heart Line Association 1992
ISBN: 0951527010
A detailed and informative handbook containing clear explanatory diagrams of up to twenty different heart problems as well as information on heart operations, what to expect in hospital and various problems you may encounter such as feeding. This book is an absolute necessity for anyone whose child is to have cardiac surgery.
New Approaches to Down Syndrome
Ed. Brian Stratford and Pat Gunn.
Pub. Continuum International Publishing Group - Academi 1996
ISBN: 0304333506
This is the updated edition of 'Current approaches to Down Syndrome' and is a comprehensive account of recent developments and practical implications by various international experts. This book is very interesting for parents and a must for professionals.
Down Syndrome : The Facts
By Mark Selikowitz.
Pub. Oxford University Press 1997
ISBN: 192626620
A very up to date concise little book full of facts and practical advice. A handy book to refer to again and again. Written by an Australian consultant paediatrician, it is easy to read and covers all the topics in a clear and accessible style.
The Down's Syndrome Handbook: A Practical Guide for Parents
By Dr. Richard Newton.
Pub Vermilion 2003
ISBN: 0091884306
A practical comprehensive handbook, particularly useful for those wanting a good introduction to the medical aspects of the condition. Written in conjunction with the Down's Syndrome Association it contains up to date information on current medical knowledge and advice on the care of babies and young children as well as emotional development and integration into society.
Down's Syndrome : An Introduction for Parents
By Cliff Cunningham
Pub. Souvenir Press 1992
ISBN: 0285649310
A comprehensive introduction to all aspects of Down's Syndrome and widely considered to be the standard work on the subject. Most of the original photos from the older edition have been replaced by more up to date ones. The book deals sympathetically with its subject and Cliff Cunningham is an expert in his field.
Medical and Surgical Care for Children with Down Syndrome: A Guide for Parents
Ed. D.C. Van Dyke, M.D. Philip Mattheis, et al.
Pub. Woodbine House 1995
ISBN: 0933149549
An American book written by twenty five authors who are experts in their various fields including heart problems, ear, nose and sinus conditions, gastro-intestinal problems, dental concerns, immune system problems, leukaemia, and many more. It is comprehensive and gives parents a complete and easily understandable guide to all the medical conditions that are more common among children with Down's Syndrome.
Babies with Down Syndrome: A New Parents Guide
Ed. Karen Stray Gunderson
Pub. Woodbine House 1995
ISBN: 0933149646
This really is a new parents guide and an extremely good one. It is most informative while remaining compassionate and easy to read. The first book that parents and professionals should turn to for information on Down's Syndrome. Newly revised and written by parents, doctors, nurses, teachers and lawyers who cover everything parents need to know from prenatal testing and early intervention to cardiac and other medical issues. Although it is an American book we would recommend it to anyone.
Down Syndrome: Advances in Medical Care (Progress in Clinical & Biological Research)
Ed. Ira Lott, and Ernest McCoy.
Pub. John Wiley & Sons Inc 1992
ISBN: 0471561843
An American textbook written primarily for professionals but covers all aspects of medical care including clinical advances in many areas such as cardiovascular problems. The discussion of many healthcare issues will be of interest to parents who don't mind some heavy medical jargon.
A Parent's Guide to Down Syndrome
By Siegfried M. Pueschel
Pub. Brookes Publishing Co 2000
ISBN: 1557664528
This book tells you not just what to expect as your child with Down syndrome grows up but also what you can hope for in terms of health, schooling, and your child's life in the community. It includes reassuring guidance, and straightforward explanations.
Too Deep for Tears
By Sarah Boston
Pub. Rivers Oram Press/Pandora List 1994
ISBN: 0044408919
The sequel to "Will My Son", this book celebrates what should have been Will's 18th birthday. Written in the same honest and direct style this unique work looks at the changes society's attitudes to Down's Syndrome over the last two decades. The affect of the publication of "Will My Son" on Sarah and her family is discussed as well as attitudes to infant death, maternal grief, and antenatal testing. A very emotional and touching book.
Living with Grief (Overcoming Common Problems)
By Dr. Tony Lake.
Pub. Sheldon Press. 1996
ISBN: 0859694267
Dr. Lake's sympathetic book describes all the different aspects of grief following bereavement. He shows how it progresses through phases and how to work through and come to terms with it. Special chapters on sudden loss, the death of a child, and a parent, are included as well as help for those who know they are dying.
The Bereaved Parent
By Harriot Sarnoff Schiff
Pub. Souvenir Press 1992
ISBN: 0285648918
The classic work on recovering from the death of a child. Written by a woman who lost her own son, this is a book for parents at any stage of anguish: whether they have just buried a child, or are caught up in the turmoil and depression of the long aftermath.
You'll Get Over It: Rage of bereavement
By Virginia Ironside
Pub. Penguin Books Ltd 1997
ISBN: 0140236082
Drawing on other people's accounts as well as her own experiences of bereavement, the author has written a book of extraordinary honesty and insight, telling the truth about the bereavement as it is, not as it ought to be.
Badger's Parting Gifts
By Susan Varley
Pub. Picture Lions 1994
ISBN: 0006643175
This sensitive children's story can help them come to terms with the death of those they love. When old badger dies, his friends think they will be sad forever. However, gradually they are able to remember him with joy and treasure the gifts he left behind.
Water Bugs and Dragonflies: Explaining Death to Young Children
By Doris Stickney
Pub. Continuum International Publishing Group - Academi 2002
ISBN: 0826464580
This little story is a way of explaining death to children by using the analogy of the water bug's short life underwater as mans time on earth and their emergence as dragonflies into the bright sunlit world as mans life after death.
Down Syndrome Research and Practice (Journal)
Published by Down's Syndrome Educational Trust since 1993, Down Syndrome Research and Practice is the only international journal that focuses on current scientific research involving persons with Down's Syndrome. It is the only journal for original research papers on the development of therapeutic and educational needs of people with Down's Syndrome and papers which evaluate interventions and professional practice. Some of the information can be quite technical and detailed and is mainly for professionals. However, it can be extremely interesting for parents to read in up to date research detail about everything from language development, psychosocial disorders and Thyroid Dysfunction to Ocular disorders, and school integration.
Down Syndrome News and Update (Journal)
Also published by Down's Syndrome Educational Trust, Down Syndrome News and Update provides detailed information for professionals and parents caring for individuals with Down Syndrome, providing the latest practical reviews of topics related to Down's Syndrome, including education, early development, health, and social skills.
Videos
"Heart Problems in children with Down's Syndrome"
by Down's Heart Group
"When Our Baby Died"
by Child Bereavement Trust
"Bereavement Services"
The work of Cruise Bereavement Care and Compassionate Friends
A set of three videos by the British Heart Foundation
- Children and Heart Disease
- Children in Surgery and Intensive Care
- Children and Catheterisation
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