Useful Links
Down's Heart Group Online Community
Down's Heart Group has an online community of worldwide contacts who keep in touch via email messages. Members can elect to receive individual emails, a daily digest or to read messages by going to the online message board. There is also an area where photographs, articles and links to useful sites are posted. To join the ecommunity please click the link below.
Click to join Downs-Heart
Medical Organisations in the UKSadly there are several medical problems associated with Down's Syndrome, these links are for UK sites that provide information on some of the most common ones. British Heart FoundationThe British Heart Foundation is Britain's leading charity fighting heart and circulatory disease - the UK's biggest killer. The BHF funds research, education and life-saving equipment and helps heart patients return to a full and active way of life. The charity relies on donations to continue its vital work.www.bhf.org.uk
Children's Heart FederationThe umbrella organisation for UK children's cardiac groups. Providing a range of information for families as well as making grants for equipment & support, and organising special trips.www.childrens-heart-fed.org.uk
Dr FosterDr Foster is the UK's leading provider of comparative information on health and social care services, the site's online tools and consumer guides enable both health and social care users and providers to make better informed decisions.www.drfosterhealth.co.uk
Down Syndrome Medical Interest GroupA network of doctors from the UK and Republic of Ireland who have a specialist interest in Down's syndrome. Their aim is to share and to disseminate to health care professionals a wide range of evidence-based and other information about the medical aspects of Down's Syndrome and to promote interest in the specialist medical management of the syndrome.www.dsmig.org.uk
Down's Syndrome Vision Research UnitStudies eye defects and visual development in individuals with Down's Syndrome and their effect on learning.www.caerdydd.ac.uk/optom/research/researchunits/downssyndrome/
GUCH - Grown Up Congenital Heart Patients AssociationA UK charity, which provides information and support for young people and adults who were born with a heart condition, and their families.www.guch.org.uk
PINNT - Patients on Intravenous and Nasogastric Nutrition TherapyThis site is intended for all nutrition patients and their carers as well as healthcare professionals and the general public and of course, PINNT members, both adults and children.www.pinnt.com
Pulmonary Hypertension Association UKProviding support, understanding and information for all those people whose lives are touched by Pulmonary Hypertensionwww.phassociation.uk.com
The Children with Down’s Syndrome StudyThe Children with Down’s Syndrome Study is a landmark study set up with the support of the Down’s Syndrome Association, the Down’s Syndrome Medical Interest Group, families of children with Down’s syndrome, health professionals and researchers in order to learn more about the health of children with Down’s syndrome. Children in the study will be followed from birth onwards. The information gathered will help us to understand their health in order to improve health care delivery to all children with Down’s syndrome.www.cdss.org.uk
Link Categories
To make it easier to navigate, links have been broken down into categories. Please click a category to view the appropriate links.
- National Down's Syndrome Organisations in the UK
Although UK specific, these sites contain lots of information that will be helpful for anyone.
- Regional Down's Syndrome Groups in the UK
If you are looking to meet families locally, see if there is a group near to you.
- Medical Organisations in the UK
Sadly there are several medical problems associated with Down's Syndrome, these links are for UK sites that provide information on some of the most common ones.
- Medical Organisations worldwide
Other sites from around the world dealing with the most common medical problems associated with Down's Syndrome. Whilst the conditions are the same, treatments and resources may vary depending on where you are.
- Other Support Organisations in the UK
There are several UK organisations which offer more general services relating to disability which can be very useful to individuals, families and carers.
- Other useful UK websites
This section includes links to UK sites which provide specific services for people with disabilities, such as housing advice and equipment adaptations.
- Down's Syndrome Umbrella Organisations
Links to the International and European umbrella organisations for Down's Syndrome.
- Mosaic Down's Syndrome Organisations
Links to Organisations dealing specifically with Mosaic Down's Syndrome.
- European Down's Syndrome Organisations
Links to Down's Syndrome organisations in different European countries.(apart from Spain which is listed seperately)
- Spanish Down's Syndrome Organisations
Links to Down's Syndrome organisations in Spain
- Australian Down's Syndrome Organisations
Australia has many Down's Syndrome groups which we have listed here.
- Canadian Down's Syndrome Organisations
Canada also has many groups nationally and locally that we have listed here.
- United States Down's Syndrome Organisations
In the USA there are many Down's Syndrome groups, both national and local organisations are listed here.
- Organisations in the Rest of The World
Links to Organisations in all other countries dealing specifically with Down's Syndrome.
- Educational sources for Down's Syndrome
Links focusing on education for people with Down's Syndrome, specifically speech and language development and numeracy.
- Personal sites for people with Down's Syndrome and businesses run my people with Down's Syndrome.
Not everyone with Down's Syndrome can be a high achiever, but take a look at these sites and see what is possible!
- Parents sites
Some very inspiring sites and articles reflecting the positive side of Down's Syndrome from parents - some of whom are famous.
- Other Learning Disability related sites that may be of interest
This includes sites to do with dance, swimming and theatre as well as some relating to John Langdon Down.
- Other sites that may be of interest
This includes sites providing services that may be useful such as childcare for special needs children, adapted play equipment and accomodation.
Disclaimer
DHG has included links to aid visitors. At the time of inclusion it was felt that these sites offered correct and useful information, but DHG has no control over the content of these sites or any changes they may undergo. Their inclusion does not in any way imply endorsement by DHG.
If you would like to suggest other sites for inclusion, please email includeasite@dhg.org.uk
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