Useful Links
Down's Heart Group Online Community
Down's Heart Group has an online community of worldwide contacts who keep in touch via email messages. Members can elect to receive individual emails, a daily digest or to read messages by going to the online message board. There is also an area where photographs, articles and links to useful sites are posted. To join the ecommunity please click the link below.
Click to join Downs-Heart
Other sites that may be of interestThis includes sites providing services that may be useful such as childcare for special needs children, adapted play equipment and accomodation. Apps for Children with Special Needsa4cwsn is committed to helping the families and carers of children with special needs and the wider community of educators and therapists who support them, by producing videos that demonstrate how products designed to educate children and build their life skills really work from a user perspective.a4cwsn.com
Council for Disabled Children (CDC)The Council for Disabled Children (CDC) is the umbrella body for the disabled children's sector in England, with links to other UK nations. Especially see their downloadable Legal Handbookwww.councilfordisabledchildren.org.uk
Da Vinci MobilityManufactuers of bespoke lightweight wheelchairs and handcycles for everday use and sports for children and adultswww.davincimobility.co.uk
Disability SanctuaryDisability Sanctuary is a dedicated Online community for people with amy form of disability. Find and ask questions, offer advice & information about health, work, benefits & Disability insurance issue's.www.disabilitysanctuary.com
EasyhealthEasyhealth was made so that people know where to find ‘accessible’ health information . ‘Accessible’ information is information that uses easy words with pictures.http://www.easyhealth.org.uk
GMC's Learning disabilities website This site aims to help doctors provide better care for people with learning disabilities by: identifying the issues, highlighting patient perspectives, showing how to put GMC guidance into practice.www.gmc-uk.org/learningdisabilities/
Improving Health and Lives: Learning Disabilities ObservatoryThe Observatory aims to provide better, easier to understand, information on the health and wellbeing of people with learning disabilities. Gathering information from across England, it will help hospitals and other providers of health and social care, to understand better the needs of people with learning disabilities, and their families and carers. This should help to identify quality improvements that will ensure the best possible outcomes for the health and lives of people with learning disabilities.http://www.improvinghealthandlives.org.uk/
Marriage CareMarriage Care is a charity operating across England and Wales, from 53 Centres, with 80 counselling locations. They have just secured specific funding to offer some 3,000 counselling hours to the parents (can mean single, divorced, separated or more distantly related adult carers) of disabled or chronically sick children. The pilot project will start in May 2011 and cover Greater London and Essex, but if feedback is positive, they hope to extend the service. Appointments should be made through their national appointments service: 0800 389 3801www.marriagecare.org.uk
One Place for Special NeedsOne Place for Special Needs helps you find more and do more in the disability community. It's the perfect place for the newly diagnosed family as well as seasoned special needs parents and individuals.www.oneplaceforspecialneeds.com
Rix CentreThe Rix Centre delivers a rolling programme of research & development projects as well as providing teaching & learning in Multimedia Advocacy and implementing wider Multimedia Advocacy based initiatives across the fields of health, social care and education.www.rixcentre.org/
SNAP ChildcareRecruitment agency for special needs nannies and care workers who wish to work with babies, children and young adults with additional needs - and their siblings!www.snapchildcare.co.uk
Specs4UsSpectacle frames specially formatted to fit children with Down syndrome and other special needs. Including a list of overseas supplierswww.specs4us.com
Working FamiliesWorking Families is the UK’s leading work-life balance organisation. We help children, working parents and carers and their employers find a better balance between responsibilities at home and work.www.workingfamilies.org.uk
Link Categories
To make it easier to navigate, links have been broken down into categories. Please click a category to view the appropriate links.
- National Down's Syndrome Organisations in the UK
Although UK specific, these sites contain lots of information that will be helpful for anyone.
- Regional Down's Syndrome Groups in the UK
If you are looking to meet families locally, see if there is a group near to you.
- Medical Organisations in the UK
Sadly there are several medical problems associated with Down's Syndrome, these links are for UK sites that provide information on some of the most common ones.
- Medical Organisations worldwide
Other sites from around the world dealing with the most common medical problems associated with Down's Syndrome. Whilst the conditions are the same, treatments and resources may vary depending on where you are.
- Other Support Organisations in the UK
There are several UK organisations which offer more general services relating to disability which can be very useful to individuals, families and carers.
- Other useful UK websites
This section includes links to UK sites which provide specific services for people with disabilities, such as housing advice and equipment adaptations.
- Down's Syndrome Umbrella Organisations
Links to the International and European umbrella organisations for Down's Syndrome.
- Mosaic Down's Syndrome Organisations
Links to Organisations dealing specifically with Mosaic Down's Syndrome.
- European Down's Syndrome Organisations
Links to Down's Syndrome organisations in different European countries.(apart from Spain which is listed seperately)
- Spanish Down's Syndrome Organisations
Links to Down's Syndrome organisations in Spain
- Australian Down's Syndrome Organisations
Australia has many Down's Syndrome groups which we have listed here.
- Canadian Down's Syndrome Organisations
Canada also has many groups nationally and locally that we have listed here.
- United States Down's Syndrome Organisations
In the USA there are many Down's Syndrome groups, both national and local organisations are listed here.
- Organisations in the Rest of The World
Links to Organisations in all other countries dealing specifically with Down's Syndrome.
- Educational sources for Down's Syndrome
Links focusing on education for people with Down's Syndrome, specifically speech and language development and numeracy.
- Personal sites for people with Down's Syndrome and businesses run my people with Down's Syndrome.
Not everyone with Down's Syndrome can be a high achiever, but take a look at these sites and see what is possible!
- Parents sites
Some very inspiring sites and articles reflecting the positive side of Down's Syndrome from parents - some of whom are famous.
- Other Down's Syndrome related sites that may be of interest
This includes sites to do with dance, swimming and theatre as well as some relating to John Langdon Down.
- Other sites that may be of interest
This includes sites providing services that may be useful such as childcare for special needs children, adapted play equipment and accomodation.
Disclaimer
DHG has included links to aid visitors. At the time of inclusion it was felt that these sites offered correct and useful information, but DHG has no control over the content of these sites or any changes they may undergo. Their inclusion does not in any way imply endorsement by DHG.
If you would like to suggest other sites for inclusion, please email includeasite@dhg.org.uk
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