Useful Links
Down's Heart Group Online Community
Down's Heart Group has an online community of worldwide contacts who keep in touch via email messages. Members can elect to receive individual emails, a daily digest or to read messages by going to the online message board. There is also an area where photographs, articles and links to useful sites are posted. To join the ecommunity please click the link below.
Click to join Downs-Heart
Regional Down's Syndrome Groups in the UKIf you are looking to meet families locally, see if there is a group near to you. Bedfordshire Down's Syndrome Support GroupThe group exists to provide support, information and advice. At present the large majority of our members have children but we would welcome membership from every age group.www.bedsdownssyndrome.co.uk
Bristol Area Down's Syndrome SupportWe are an active parent led support group with around 150 members. Our aim is to enhance the lives of people with Down's Syndrome, their families and care givers in Bristol, Bath and surrounding area.www.dsa-bristol.org.uk
Down Syndrome Extra 21Providing support for and information on Down's syndrome in the Greater London and Essex area.www.extra21.org.uk
Down Syndrome Support Group BradfordThe Down Syndrome Support Group Bradford is a registered charity run by and for parents and carers of children who happen to have Down's Syndrome.www.downsupportbradford.ik.com
Down's Syndrome Ayrshire BranchOur members with Downs' Syndrome range is from birth to late 40's. We have members from Largs to Cumnock. We have professional members from various areas throughout Ayrshire from Doctors to Psychologists.www.downssyndromeayrshire.org
Down's Syndrome DerbyDown's Syndrome Derby aims to improve the quality of life for everyone with Down's syndrome.www.downs-syndrome-derby.org
Down's Syndrome LondonThe Down's Syndrome Association London Branch was formed in June 2000 to try to meet the needs of a number of young children with Down's Syndrome and their families.www.downs-syndrome-london.org.uk
Down's Syndrome North EastAn organisation for the help and support of all people with Down's Syndrome and their families and friends, covering Northumberland, Tyneside, Wearside, Durham and Teesside.www.downssyndromenortheast.org.uk
Down's Syndrome NorfolkDSN supports the Down's Syndrome Association (DSA) in their ambition to enable people with Down's Syndrome to lead a life of their OWN CHOOSING.www.downsyndrome-norfolk.org.uk
Essex Down's Syndrome Support Group (EDSS)Our aim is to bring families and professionals together, to help inform and support them in a social environment without any pressure.www.edss.org.uk
Kent Wide Down Syndrome GroupWe are a group of parents in Kent who have, or are associated with, children and young people with Down's Syndrome. Many of our stories are different but one things unites us all which is the positive promotion and eduication of people with Down's Syndrome. www.kentds.org
Lancashire Down's Syndrome Support GroupWe are a registered charity run by volunteer parents of children with Down's syndrome. We try to help and support other parents and adults with Down's syndrome across the county.www.dsa-lancashire.org.uk
Leicestershire Down's Syndrome GroupThe Leicester Group was founded by a small group of mothers who met during the early days of their children's lives, to give each other the support, that was unavailable elsewhere. From there the group has grown to provide a large support and advice network to many families right across Leicestershire.www.leicesterdownsgroup.co.uk
P.R.O.U.D. - Parents, Relatives & Other Understanding Down'sP.R.O.U.D. is a parent led support group based in Walsall.www.proudwalsall.org
Positively DownWe are a group of parents living in and around the London Borough of Richmond who all have children with Down Syndrome. The aim of our group is to provide support, friendship and information to families of children with Down Syndrome, wherever you live.www.btinternet.com/~suer/pd/
PSDS - Providing Support for Children with Down Syndrome and their familiesPSDS is a voluntary group in Surrey whose principal goal is to provide support for children with Down Syndrome and their families, for new and existing parents.www.psds.info
South Bucks Down's Syndrome GroupWe are a local group of parents of a child or adult with Down's syndromewww.sbdsg.org.uk
Stepping Stones Down Syndrome Support GroupOur group is run by parents, for parents and carers of children with Down syndrome in North Hampshire, Berkshire and Surrey. If you are able to travel to our group then you are welcome to attend.www.steppingstonesds.co.uk
SUNDOWNS - Supporting, Understanding Needs of Down's SyndromeWhilst we operate from the Wirral on Merseyside and only provide services within the Wirral and South Wirral area, we have subscribing members from all over the U.K.www.sundowns.org.uk
Swindon Down's Syndrome GroupWe aim to support people with Down's Syndrome, their families and carers and all those with an interest in Down's Syndrome in Swindon and the surrounding area.www.swindondownsgroup.org.uk
The Education Centre for children with Down syndromeWe run an Early Development Group for pre-school children and their parents, weekly during term-time (36 weeks per year). In September 2006 we launched a new School-Age Group for 4-11 year old children. These sessions are run in Darlington, but we also take children from surrounding areas including the rest of County Durham, Tyne & Wear, Cleveland and North Yorkshire.www.eccds.org.uk
The UPS of DownsSupport for families in the Warrington area of Cheshire.www.littleangels.gbr.cc
UpsideOfDownsA Support Group for Parents & Carers of children and Adults with Down’s syndrome in London.www.upsideofdowns.org.uk
Link Categories
To make it easier to navigate, links have been broken down into categories. Please click a category to view the appropriate links.
- National Down's Syndrome Organisations in the UK
Although UK specific, these sites contain lots of information that will be helpful for anyone.
- Regional Down's Syndrome Groups in the UK
If you are looking to meet families locally, see if there is a group near to you.
- Medical Organisations in the UK
Sadly there are several medical problems associated with Down's Syndrome, these links are for UK sites that provide information on some of the most common ones.
- Medical Organisations worldwide
Other sites from around the world dealing with the most common medical problems associated with Down's Syndrome. Whilst the conditions are the same, treatments and resources may vary depending on where you are.
- Other Support Organisations in the UK
There are several UK organisations which offer more general services relating to disability which can be very useful to individuals, families and carers.
- Other useful UK websites
This section includes links to UK sites which provide specific services for people with disabilities, such as housing advice and equipment adaptations.
- Down's Syndrome Umbrella Organisations
Links to the International and European umbrella organisations for Down's Syndrome.
- Mosaic Down's Syndrome Organisations
Links to Organisations dealing specifically with Mosaic Down's Syndrome.
- European Down's Syndrome Organisations
Links to Down's Syndrome organisations in different European countries.(apart from Spain which is listed seperately)
- Spanish Down's Syndrome Organisations
Links to Down's Syndrome organisations in Spain
- Australian Down's Syndrome Organisations
Australia has many Down's Syndrome groups which we have listed here.
- Canadian Down's Syndrome Organisations
Canada also has many groups nationally and locally that we have listed here.
- United States Down's Syndrome Organisations
In the USA there are many Down's Syndrome groups, both national and local organisations are listed here.
- Organisations in the Rest of The World
Links to Organisations in all other countries dealing specifically with Down's Syndrome.
- Educational sources for Down's Syndrome
Links focusing on education for people with Down's Syndrome, specifically speech and language development and numeracy.
- Personal sites for people with Down's Syndrome and businesses run my people with Down's Syndrome.
Not everyone with Down's Syndrome can be a high achiever, but take a look at these sites and see what is possible!
- Parents sites
Some very inspiring sites and articles reflecting the positive side of Down's Syndrome from parents - some of whom are famous.
- Other Learning Disability related sites that may be of interest
This includes sites to do with dance, swimming and theatre as well as some relating to John Langdon Down.
- Other sites that may be of interest
This includes sites providing services that may be useful such as childcare for special needs children, adapted play equipment and accomodation.
Disclaimer
DHG has included links to aid visitors. At the time of inclusion it was felt that these sites offered correct and useful information, but DHG has no control over the content of these sites or any changes they may undergo. Their inclusion does not in any way imply endorsement by DHG.
If you would like to suggest other sites for inclusion, please email includeasite@dhg.org.uk
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