Useful Links
Down's Heart Group Online Community
Down's Heart Group has an online community of worldwide contacts who keep in touch via email messages. Members can elect to receive individual emails, a daily digest or to read messages by going to the online message board. There is also an area where photographs, articles and links to useful sites are posted. To join the ecommunity please click the link below.
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United States Down's Syndrome OrganisationsIn the USA there are many Down's Syndrome groups, both national and local organisations are listed here. National Association for Down SyndromeOur mission is to ensure that all persons with Down's Syndrome have the opportunity to achieve their potential in all aspects of community life. We offer information, support and advocacy.www.nads.org
National Down Syndrome CongressThe mission of the NDSC is to provide information, advocacy and support concerning all aspects of life for individuals with Down's Syndrome.www.ndsccenter.org
Arkansas Down Syndrome AssociationThe mission of the Arkansas Down Syndrome Association is to promote comprehensive community based health care services for individuals in the state of Arkansas who have Down syndrome.www.ardownsyndrome.org
A.C.D.S. - Association For Children With Down SyndromeACDS is dedicated to providing lifetime resources of exceptional quality, innovation and inclusion for individuals with Down syndrome and other developmental disabilities and their families!www.acds.org
Broward Gold Coast Down Syndrome OrganizationOur goal is simple, to enhance the lives of individuals with Down syndrome by helping them reach their full potential by providing family support, education and social activities.www.bgcdownsyndrome.org
BUDS - Better Understanding of Down SyndromeSupport Group for Down Syndrome Families in West Texas and Eastern New Mexicowww.budsonline.net
BUDS - Bringing Up Down's SyndromeThe purpose of BUDS of South Jersey,is to help families of children with Down syndrome address issues associated with raising a child with Down's syndrome.www.bringingupdownsyndrome.org
Central Illinois Down Syndrome Organization (CIDSO)We seek to promote independence and inclusive opportunities for all people in our area with Down syndrome that they may become productive citizens with the maximum opportunity to reach their full potential as human beings.www.cidso.org
Central Mississippi Down Syndrome SocietyA very active group of parents have united together to share ideas, offer emotional support, provide educational information, and to actively promote a positive image of people with Down syndrome in our community.www.cmdss.org
Central Oregon Down Syndrome NetworkOur mission is to promote a positive understanding of Down syndrome and inclusion, as well as be a source of support, information, and education for families, professionals and individuals touched by Down syndrome.www.codsn.org
Centre County Down Syndrome SocietyThe CCDSS was organized by a group of families in the Centre County PA region who recognized a need for, and wanted to provide, a local informational and support resource network.www.centrecountydownsyndrome.org
Chester County Down Syndrome Interest GroupWe are students, we are lawyers, we are teachers, we are scientists, we are tradesmen, we are bankers, we are homemakers, we are doctors; we are all people whose lives have been touched by Down syndrome. www.ccdsig.org
Coastal Bend Down Syndrome Advocates (CBDSA)Based in beautiful Corpus Christi, Texas, we intend to provide support to all whose lives are affected by Down syndrome, educate the community about Down Syndrome but most of all promote inclusion and have fun with our children.www.cbdsa.com
Colorado Springs Down Syndrome Association (CSDSA)CSDSA is a volunteer group of families with children who have Down syndrome, as well as people interested in helping us in our endeavor to inform and remain updated on Down syndrome.www.csdsa.org
Connecticut Down Syndrome CongressThe Connecticut Down Syndrome Congress was formed in May 1986 as a special interest group to advocate for persons with Down's Syndrome in the state of Connecticut. Today we are a welcoming and supportive network of over 350 parents, numerous professionals and over 20 advocacy groups statewide.www.ctdownsyndrome.org
Down Syndrome Aim High Resource Center (DSAHRC)The Down Syndrome Aim High Resource Center provides parent-to-parent and professional services and support to individuals with Down syndrome and their families.www.aim-high.org
Down Syndrome Association for FamiliesThe Down Syndrome Association for Families (DSAF) is a Lincoln non-profit organization that provides support for individuals with Down syndrome, their families, friends, educators, and professionals who share in their lives.www.dsafnebraska.org
Down Syndrome of Atlanta (DSAA)DSAA enhances the lives of individuals with Down syndrome and their families through support, education, advocacy and awareness.www.atlantadsaa.org
Down Syndrome of LouisvilleOur mission is to improve the lives of persons with Down syndrome and their families by providing support, information, education, and advocating for their rights and concerns. Specifically to enable the individual to reach their full potential.www.downsyndromeoflouisville.org
Down Syndrome Association of Brazos ValleyThe mission of the Down Syndrome Association of Brazos Valley is to enlighten the public by promoting a positive understanding of Down syndrome in the community and be a source of support, information and education for families and individuals affected by Down syndrome.www.downsyndromeofbcs.com
Down Syndrome Association of Central FloridaWe offer hope, encouragement and acceptance through advocacy, education and awareness so that each may realize their potential as members of our community.www.dsacf.org
Down Syndrome Association of Central Kentucky (DSACK)The mission of Down syndrome Association of Central Kentucky (DSACK) is to enhance the lives of individuals with Down syndrome throughout their life span by providing support, information and education to families, professionals and the communities that make up the Central Kentucky region.www.dsack.org
Down Syndrome Association of Central New JerseyDown Syndrome Association of Central New Jersey is a non-profit parent support group, established to assist families of children and adults with Down syndrome.www.dsacnj.org
Down Syndrome Association of Central Oklahoma (DSACO)DSACO provides new parents with packets that include parent contacts, current handouts on Down syndrome, and inspirational materials. It is very important that new families have a support system and are able to talk with other parents.www.dsaco.org
Down Syndrome Association of Central TexasWe are a nonprofit organization committed to spreading awareness and educating its membership and the general public about all issues associated with Down syndrome. This is accomplished by the development of activities and programs that promote inclusion and acceptance of people with Down syndrome in our community.www.dsact.com
Down Syndrome Association of CharlotteThe goal of the DSAC and it's families is to enable individuals with Down's Syndrome to reach their full potential and become respected members of their community.www.dsacnc.org
Down Syndrome Association of DelawareThe Down Syndrome Association of Delaware was founded in 1979 as a non-profit parent association. We aim to be a supportive resource, advocating for the acceptance and understanding that allows individuals with Down syndrome to achieve the same level of access and opportunity as their peers.www.dsadelaware.org
Down Syndrome Association of Greater CincinnatiThe DSAGC serves the southwest Ohio, northern Kentucky, and southeastern Indiana including Boone, Brown, Butler, Campbell, Clermont, Dearborn, Hamilton, Kenton and Warren counties.www.dsagc.com
Down Syndrome Association of Greater RichmondWe provide access to current and accurate information on Down syndrome. We also foster programs that focus on education, community services, public awareness, medical issues, research advocacy, legal issues and parenting.www.dsagr.com
Down Syndrome Association of Greater St. LouisOur mission is to benefit the lives of people with Down syndrome and their families through individual and family supports, information, public awareness and advocacy. www.dsagsl.org
Down Syndrome Association of Greater ToledoThe Vision of the Down Syndrome Association of Greater Toledo is to increase the public's awareness and understanding by educating the public, professionals and community reguarding the abilities of people with Down syndrome not their disabilities.www.dsagt.org
Down Syndrome Association of Hampton RoadsOur mission is to enhance the lives of individuals with Down's Syndrome, helping them reach their full potential by providing family support, education and social opportunities in Southeast Virginia and Hampton Roads.www.dsahr.org
Down Syndrome Association of HoustonThe Down Syndrome Association of Houston is a non-profit organization. Our goal is to provide information and support to anyone interested in Down Syndrome. www.dsah.org
Down Syndrome Association of Hudson ValleyDSAHV aims to provide support to new parents, to obtain and provide up to date information on Down syndrome and to increase community awareness.www.dsahv.org
Down Syndrome Association of JacksonvilleThe mission of this association is to provide individuals with Down Syndrome opportunities to develop their potential in a supportive family, professional and community environment.www.dsaj.org
Down Syndrome Association of Los AngelesDSALA exists to enhance the welfare of people with Down's Syndrome and their families through the development and promotion of education, counseling, employment and recreational programs.www.dsala.org
Down Syndrome Association of Memphis and the Mid-SouthDSAM provides information for families of newborn babies with Down's Syndrome as well as current, unbiased and updated information to professionals.www.dsamemphis.org
Down Syndrome Association of Minnesota It is the mission of the Down Syndrome Association of Minnesota to provide information, resources and support to individuals with Down syndrome, their families and their communities.www.dsamn.org
Down Syndrome Association of Northern VirginiaThe mission of this organization shall be to ensure that all individuals with Down syndrome and their families receive the support necessary to participate in, contribute to and achieve fulfillment of life in their community.www.dsanv.org
Down Syndrome Association of Northeast IndianaThe Down Syndrome Association of Northeast Indiana exists as an advocacy organization to enhance the lives of individuals with Down's Syndrome, provide information and support to families and professionals and promote awareness and acceptance of individuals with Down's Syndrome within our community.www.dsani.org
Down Syndrome Association of Riverside County WestDown Syndrome Association of Riverside County Westwww.dsarcw.org
Down Syndrome Association of RoanokeThe Down Syndrome Association of Roanoke, VA is made up of families, friends, professionals, and individuals with Down syndrome in Southwestern Virginia.www.dsar.org
Down Syndrome Association of San AntonioThe Down Syndrome Assocation of San Antonio is dedicated to providing information and support for families andd friends of children and adults with Down Syndrome.www.dsasa.org
Down Syndrome Association of San DiegoThe Down Syndrome Association of San Diego envisions all people with Down syndrome will be afforded the same life opportunities, to be valued and respected as contributing members of society.www.dsasdonline.org
Down Syndrome Association of Southern OregonThe mission of the Down Syndrome Association of Southern Oregon is to Enhance and expand the life opportunity of individuals with Down's Syndrome.www.dsaso.org
Down Syndrome Association of TallahasseeThe mission of the Down Syndrome Association of Tallahassee is to provide education, support, and resources to individuals with Down syndrome, their families, professionals, and the community while building public awareness and acceptance of the abilities of individuals with Down syndrome.www.dsatallahassee.org
Down Syndrome Association of the LowcountryThe purpose of Down Syndrome Association of the Lowcountry (DSAL) is to promote an environment which fosters the growth and development of people with Down's Syndrome to enable them to achieve their full potential.www.dsalowcountry.org
Down Syndrome Association of the Valley DSAV)Serving Northeast Ohio & Western Pennsylvania.www.dsav.org
Down Syndrome Association of TulsaDSAT is a non-profit organization that exists to enhance the lives of individuals with down syndrome, their families and caregivers.www.dsat.org
Down Syndrome Association of Westchester DSAW was formed by a group of parents who wanted to expand the resources available to persons living in Westchester who have Down syndrome and their families. DSAW also seeks to raise public awareness of Down syndrome and foster greater acceptance of persons with Down syndromewww.westchesterdsa.org
Down Syndrome Association of West MichiganWe are a group of parents who have children with Down's Syndrome. We have banded together to share knowledge with other families and help and support new parents. We also find it necessary to better educate ourselves, professionals and the public about Down's Syndrome and to constantly remind everyone of all the things our children can do!www.dsawm.org
Down Syndrome Association of Wisconsin (DSAW)DSAW's mission is simple. We are here to provide support to families and individuals with Down syndrome through education, information, and the exchange of ideas and experiences.www.dsaw.org
Down syndrome Development Council - Lake County, IllinoisOur mission is to promote a greater acceptance and understanding of Down syndrome, by enlightening the broader community to recognize the individuality, uniqueness and capabilities of individuals with DS.www.theddc.org
Down Syndrome Foundation of Orange CountyOur mission is to serve people with Down syndrome through educational, social and support programs delivered in partnership with individuals, families, professionals and communities.www.dsfoc.org
Down Syndrome Group of Northwest New JerseyOur Purpose.... To enhance the quality of life for all individuals with Down syndrome by providing resources and support to those individuals, their families, professionals and the community.www.dsgnwnj.org
Down Syndrome Group of the OzarksWe welcome anyone who is interested in advancing the quality of life for individuals with Down syndrome such as parents, caregivers, educators, therapist and other professionals.www.ozarksdsg.org
Down Syndrome Guild of DallasThe Down Syndrome Guild of Dallas provides accurate and current information, resources and support for people with Down syndrome, their families and the community.www.downsyndromedallas.org
Down Syndrome Guild of Greater Kansas CityDSG seeks to provide the entire community with information and education to broaden awareness and foster positive attitudes regarding people with Down syndrome.www.kcdsg.org
Down Syndrome Information Alliance A community organization dedicated to providing resources and support to families, therapists, physicians, educators and others affected by Down syndrome in Northern California. Improving access to the most advanced and innovative care to promote health, education and independence.http://www.downsyndromeinfo.org/index.php
Down Syndrome Network(Arizona)Exists to effect change in policies and behavior to improve services, education, employment and overall quality of life for people with DS and their families.www.dsnetworkaz.org
Down Syndrome Network of Montgomery CountyThe Down Syndrome Network of Montgomery County, Maryland is an organization of families with a child with Down Syndrome, adults with Down Syndrome, medical professionals and others who serve people with Down Syndrome, and government service providers.www.dsnmc.org
Down Syndrome of Louisville We believe in the support and education of all families, guardians and professionals to empower and maximize the achievements of all persons with Down syndrome.www.downsyndromeoflouisville.org
Down Syndrome Organization of Southern NevadaWe are the only organization in our region devoted exclusively to the needs of people with Down syndrome and their families.www.dsosn.org
Down Syndrome Partnership of Tarrant CountyAnyone in Fort Worth, HEB, Grapevine, Southlake, Colleyville and throughout North Texas with an interest in Down syndrome is invited to join.www.dsptc.org
Down Syndrome Society of Rhode Island (DSSRI)The Down Syndrome Society of Rhode Island (DSSRI) is dedicated to promoting the rights, dignity and potential of all individuals with Down syndrome through advocacy, education, public awareness, and support.www.dssri.org
Down Syndrome Society of WichitaThe mission of the Down Syndrome Society of Wichita is to enhance the lives of individuals with Down syndrome and their families by providing them with support and resources and by raising public awareness about Down syndrome.www.dsswichita.org
Down Syndrome Support Group of South Central KentuckySupporting individuals with Down Syndrome and their families by providing resources, activities, outreach, and advocacy for acceptance and inclusion into the community. We believe that early intervention, education, and awareness are the keys to unlocking the full potential of persons with Down Syndrome.www.downsyndromeofscky.com
DS ActionDS Action holds monthly meetings in San Diego to identify the unmet needs of people with Down syndrome and to find creative solutions to meeting those needs.www.dsaction.com
DSNetwork - Down Syndrome Knowledge, Support and AdvocacyOur mission at DSNetwork is to educate, support and advocate for those in our community impacted by Down syndrome. www.dsnetworkaz.wordpress.com
Families Exploring Down SyndromeFamilies Exploring Down Syndrome is a non-profit organization founded in 1989 by a group of parents who felt the need to share a common bond with families in the metropolitan Detroit area who were experiencing the same feelings, heartaches, and joys.www.familiesexploringdownsyndrome.org
Families Exploring Down Syndrome - BrevardWe are a group of parents who support each other as we travel down this road together. This website was created to help new parents and old to find information about Down syndrome in Brevard county.www.fedsofbrevard.org
Family Ideas Network for Down Syndrome (FINDS)FINDS is a parent support group serving McHenry County and Northern Kane counties in Illinois. We share information with our members through monthly coffees, a bi-monthly newsletter, educational speakers, and several parties during the year.http://findsdownsyndrome.com
Fresno Area Down Syndrome Societyhe goal of the society is to provide programs that promote greater awareness of the developmental, educational, and social potential of people with Down syndrome.www.fadss.net
Gold Coast Down Syndrome OrganizationThe Gold Coast Down Syndrome Organization will be a driving force in our community, generating acceptance and belonging of individuals with Down syndrome. We will create a society in which people with Down syndrome can involve themselves in activities that will assist in their personal development. This will include their choice to pursue a higher education level, better employment opportunities, and a variety of recreational activities, all without prejudice or discrimination.www.goldcoastdownsyndrome.org
Grand Strand Down Syndrome Society (GSDSS)GSDSS strives to create a positive image of Down syndrome in the community and offer a sense of belonging. It is our dream to see individuals with Down syndrome succeed in all aspects of life.www.gsdss.net
Green River Area Down Syndrome AssociationGRADSA's mission is to enable families enriched with the Down syndrome connection to share resources, build friendships, and advocate together for the future of individuals with Down syndrome. www.gradsa.org
Gulf Coast Down Syndrome SocietyIt is our mission to ensure that all people with Down syndrome have the opportunity to achieve their full potential in community life. At the same time, it is our goal to provide children and adults with Down syndrome peer groups in which they can form lifelong friendshipswww.gcdss.org
Hawkeye Area Down Syndrome AssociationOur goal is to provide education, support and advocacy to those individuals, their friends, families and professionals in the Iowa City and Cedar Rapids area that are blessed by Down's Syndrome. We hope that through our efforts, we can enhance the quality of life for all individuals with Down's Syndrome.www.hadsa.org
Indiana Down Syndrome FoundationThe mission of the Indiana Down Syndrome Foundation is to serve as a helpful resource providing information, support and activities that combined or individually promote growth and participation of people with Down's Syndrome in their community.www.indianadsf.org
Knowledge and Information about Individuals with Down Syndrome - KIIDS KIIDS is a non-profit organization based in Southern New Jersey. It was founded in 2003 by several mothers of young children with Down syndrome who met at a monthly playgroup.www.kiids.info
Lowcountry Down Syndrome SocietyA family support group for anyone touched by Down syndrome in the greater Savannah/Lowcountry area.www.ldssga.org
Madison Area Down Syndrome SocietyProviding support to families and individuals with Down syndrome while advancing awareness, respect, and opportunity.www.madss.org
Massachusetts Down Syndrome Congress (MDSC)Aim to enhance the lives of individuals with Down syndrome through the education and support of people with Down syndrome, their families, their friends, their teachers, and the community as a whole.www.mdsc.org
Mile High Down Syndrome AssociationThe mission of Mile High Down Syndrome Association of Denver is to assure inclusion and enhance independence of people with Down syndrome. We will achieve this by providing education, resources and support in partnership with individuals, families, professionals, and the community.www.mhdsa.org
Network 21Network 21 is a parent-run network for families with Down syndrome in Central New Jersey. We connect and support parents, caregivers, and individuals with Down syndrome. We identify and share resources that can better provide for the needs of individuals with Down syndrome in our community.www.dsnetwork21.org
North Country Down Syndrome AssociationThe North Country Down syndrome Association offers support and financial assistance to individuals with Down Syndrome and their families. www.ncdsasite.org
Northern New England Down Syndrome Congress (NNEDSC)The NNEDSC strives to promote inclusivity in all settings, and all of our activities shall be devoted to the achievement of positive attitudes regarding Down syndrome in the northern New England area.www.nnedsc.org
Piedmont Down Syndrome Support GroupOur aim is to support each other and enrich the lives of our children so they may reach their fullest potential.www.pdssn.com
Riverbend Down Syndrome Parent Support GroupAs a community group of the Down's Syndrome Association of Greater St. Louis, we provide support and information to parents of children with Down's Syndrome in Southwestern Illinois. Our aim is to support each other and enrich the lives of our children so they may reach their fullest potential to lead an independent life within the community.www.altonweb.com/cs/downsyndrome
S.M.I.L.E. on Down SyndromeSince February of 2001, S.M.I.L.E on Down Syndrome has been growing in leaps and bounds in Southern Indiana. S.M.I.L.E. stands for Support, Management, Information, Love and Encouragementwww.smileondownsyndrome.org
Southern Arizona Network for Down Syndrome (SANDS)SANDS was born with this mission: to improve and enrich the lives of individuals with Down syndrome and to promote public awareness.www.sandsaz.org
The Upside of Downs of Greater ClevelandThe Up Side of Downs is committed to building a community where people with Down syndrome are independent and have the opportunity to reach their fullest potential.www.theupsideofdowns.org
Treasure Valley Down Syndrome AssociationThe Treasure Valley Down Syndrome Association in Idaho was founded in the early 1980s by parents who had children with Down syndrome. Their goal was to provide support and information, especially to new parents.www.idahodownsyndrome.org
Triangle Down Syndrome NetworkTriangle Down Syndrome Network exists to support and connect families of children with Down's Syndrome by organizing and promoting activities. Located in central North Carolina, serving families in Wake, Durham and Orange and surrounding counties.www.triangledownsyndrome.org
Up with Down Family Support GroupThe Up with Down Family Support Group is based in Des Moines, Iowa and serves over 150 families in central Iowa.www.upwithdown.com
Up With DownsUp With Downs is a non-profit family support group dedicated to improving the lives and livelihoods of those with Down syndrome. We hope this site provides you with information and inspiration.www.upwithdowns.com
UPS for DownS - United Parent Support for Down SyndromeUPS for DownS is a parent directed, non-profit organization offering support, education, and encouragement for parents, families and others who love and care about persons with Down syndrome. We inspire community acceptance by sharing with others the presence, potential and abilities of people with Down syndrome. www.upsfordowns.org
Utah Down Syndrome FoundationThe UDSF strives to bring families together to share experiences, challenges, goals, and dreams and to educate parents and society in understanding and appreciating the needs of individuals with Down's Syndrome. As parents gain knowledge, they are empowered to become better advocates for their children, thus providing them with increased opportunities to reach their highest potential.www.udsf.org
Willamette Valley Down Syndrome AssociationWelcome to the Willamette Valley Down Syndrome Association. Our goal is to provide support for families in Oregon’s Willamette Valley, and surrounding areas, who find themselves in the delightful position of raising a child with Down syndrome.www.wvdsa.com
Wyoming Down Syndrome AssociationAn organisation providing education, information, networking opportunities and support in Wyoming.www.wydsa.org
York Area Down Syndrome AssociationThe York Area Down Syndrome Association provides support, education, fellowship, and encouragement to families and friends who have a loved one with Down Syndrome. www.yorkareadownsyndrome.org
Link Categories
To make it easier to navigate, links have been broken down into categories. Please click a category to view the appropriate links.
- National Down's Syndrome Organisations in the UK
Although UK specific, these sites contain lots of information that will be helpful for anyone.
- Regional Down's Syndrome Groups in the UK
If you are looking to meet families locally, see if there is a group near to you.
- Medical Organisations in the UK
Sadly there are several medical problems associated with Down's Syndrome, these links are for UK sites that provide information on some of the most common ones.
- Medical Organisations worldwide
Other sites from around the world dealing with the most common medical problems associated with Down's Syndrome. Whilst the conditions are the same, treatments and resources may vary depending on where you are.
- Other Support Organisations in the UK
There are several UK organisations which offer more general services relating to disability which can be very useful to individuals, families and carers.
- Other useful UK websites
This section includes links to UK sites which provide specific services for people with disabilities, such as housing advice and equipment adaptations.
- Down's Syndrome Umbrella Organisations
Links to the International and European umbrella organisations for Down's Syndrome.
- Mosaic Down's Syndrome Organisations
Links to Organisations dealing specifically with Mosaic Down's Syndrome.
- European Down's Syndrome Organisations
Links to Down's Syndrome organisations in different European countries.(apart from Spain which is listed seperately)
- Spanish Down's Syndrome Organisations
Links to Down's Syndrome organisations in Spain
- Australian Down's Syndrome Organisations
Australia has many Down's Syndrome groups which we have listed here.
- Canadian Down's Syndrome Organisations
Canada also has many groups nationally and locally that we have listed here.
- United States Down's Syndrome Organisations
In the USA there are many Down's Syndrome groups, both national and local organisations are listed here.
- Organisations in the Rest of The World
Links to Organisations in all other countries dealing specifically with Down's Syndrome.
- Educational sources for Down's Syndrome
Links focusing on education for people with Down's Syndrome, specifically speech and language development and numeracy.
- Personal sites for people with Down's Syndrome and businesses run my people with Down's Syndrome.
Not everyone with Down's Syndrome can be a high achiever, but take a look at these sites and see what is possible!
- Parents sites
Some very inspiring sites and articles reflecting the positive side of Down's Syndrome from parents - some of whom are famous.
- Other Learning Disability related sites that may be of interest
This includes sites to do with dance, swimming and theatre as well as some relating to John Langdon Down.
- Other sites that may be of interest
This includes sites providing services that may be useful such as childcare for special needs children, adapted play equipment and accomodation.
Disclaimer
DHG has included links to aid visitors. At the time of inclusion it was felt that these sites offered correct and useful information, but DHG has no control over the content of these sites or any changes they may undergo. Their inclusion does not in any way imply endorsement by DHG.
If you would like to suggest other sites for inclusion, please email includeasite@dhg.org.uk
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