... to the website of Down's Heart Group,
a charity offering support and information relating to heart conditions associated with Down's Syndrome.
We hope you find the content useful, however, this is only part of the specialised help available to parents and professionals, including:
- one to one support
- telephone helpline
The Group aims to provide unbiased, up to date facts, thus enabling individuals to make informed choices.
If we can help you or someone you know, please contact us
NHS England’s congenital heart disease review.
NHS England, as the body responsible for commissioning specialised congenital heart services, is undertaking a national review of congenital heart services for children and adults.
The consultation is open until 5pm on December 8th and is your opportunity to comment about the proposed standards that will determine the shape of the future congenital heart service in the UK. (click on the logo to access the consultation)
'Our child' e-learning package
'An e-learning package designed to empower parents who have a child with Down's Syndrome who are facing congenital heart surgery.
It also takes parents and professionals on a journey through one family's story from diagnosis, surgery to living life to the full. Produced by the School of Health Sciences at the University of Nottingham.
UK Families, can you help?
We are a team of researchers at the University of Cambridge whose aim is to Defeat Dementia in Down’s Syndrome.
We are looking for volunteers who might be interested in taking part in one or more study with us.
Our new online giving page is now active.
Please consider making a small regular donation to support our work.
Support our work
"Including ways to support our work that earn you cash back on your shopping too! YES money for FREE!"
Click here for simple ways to help us.