Produced by the School of Health Sciences at the University of Nottingham.
The aim of this website is to provide non-medical people in the UK with good quality information about the heart conditions associated with Down’s Syndrome and other related topics. All our information publications have been written by Down's Heart Group from a parent's perspective and as well as being evidence based, ALL items of a medical nature have been checked for accuracy by professionals in the appropriate medical field.
We review Down’s Syndrome, congenital heart disease and other related websites when producing our publications, (links to many of these can be found in the ‘Links’ directory included on this website), but UK sites are the primary source of evidence as we know that there are some differences in practice and treatment in other countries. Despite this, people from outside the UK may also find Down’s Heart Group a useful resource.
As we review and update our existing publications or add new ones, we will include a list of reference sources used for each publication on Reference Sources, for your information.
This information provided on this website it to assist with understanding only and should never be used as a substitute for professional medical opinion.
The National Institute for Cardiovascular Outcomes Research (NICOR) website provides information on surgery numbers and outcomes for units and/or cardiac conditions. It is not the most patient friendly site, but you may find it helpful to look at.